Muscular Dystrophy Books

When Bridget Moore left Ireland in 1865, she never suspected that along with her trunk and rosary beads, she was bringing Duchenne Muscular Dystrophy to New York City. It wasn't until Bridget was a grandmother, one who had buried four of her grandsons, that she realized she'd brought MD to the States, a disease that would haunt her family for generations. Years later, her great-grandchildren grew up under the elevated trains of Jackson Heights, Queens—and one of them was Christine Kehl O'Hagan, the author of this moving and insightful memoir.

Christine, her sister Pam, and their brother Richie played in the streets and attended mass every Sunday. But Richie had trouble walking. By the time he was diagnosed with muscular dystrophy, Christine learned that two of her mother's brothers—uncles she'd never known about—had died of MD. Christine eventually married and had a healthy son. But one day she saw her second boy, Jamie, struggle to climb onto the school bus—and she knew knew then and there that this disease would be with her the rest of her life.

Extraordinarily written, with much honesty and humor, The Book of Kehls is the engaging story of a family that has known love, courage, and heartbreak in equal measure—and survived.

The Light in the Darkness: Buried Alive - Preparing to Die. Now Learning to Live. The LIGHT in the DARKNESS:

BURIED ALIVE

Preparing to DIE Now Learning to LIVE

is an autobiographical account in which the author, Chris Malatesta, is sharing her experience and insights into the struggle of almost drying several times, at the hands of others as a child; and life threatening diseases. The overwhelming events of life from an extremely abusive home and the miracles that come from it, makes your hair stand on end. The healing of Multiple Sclerosis, migraines and Muscular Dystrophy are only part of God's light in the tunnel.

She shares openly issues of struggles faced in marriage as well as her grateful heart for her husband's love. This is a life that has seen and experienced things of extraordinary value in the natural and the supernatural; in spite of overwhelming circumstances, HOPE from the grave; either side of it. COVER DESIGN BY MIKE BENNETT GRAPHICS
www.mikebennettgraphics.com

The Muscular Dystrophies The muscular dystrophies are an important group of inherited disorders. They are characterized by muscle wasting and weakness, but vary considerably in their clinical manifestations and severity.
This text reviews our understanding of the most important of these disorders. In many instances, the genes and protein products responsible for the dystrophies have been identified and it is now possible to establish a precise diagnosis, detect preclinical cases, identify carriers and offer prenatal dianostic testing. The book goes on to describe the opportunities for management of the symptoms through respiratory care, physiotherapy and surgical correction of contracture, and examines the potential, in the future, for effective treatment utilizing the new techniques of gene and cell therapy.
Professor Emery has invited chapters from the leading international experts in the field providing a unique insight into the current situation and the hopes for the future.

On the Edge (Silver Blades) Book One in an exciting Olympic trilogy!

Tori is skating better than ever. But she feels terrible. She's always tired, and skating seems to completely drain her. One day she even faints on the ice! Tori knows she should tell her mother she hasn't been feeling well. But the national competition is only three weeks away--it's there that the members of the U.S. Olympic team will be decided. Tori doesn't want anything to keep her from competing.

Tori's friends think she's folding under the pressure. But Tori knows it's more serious than that. Does she have the courage to face the truth?

Duchenne Muscular Dystrophy: Advances in Therapeutics (Neurological Disease and Therapy) Duchenne Muscular Dystrophy (DMD) is one of the most prevalent genetic disorders of childhood and currently stands as an incurable condition. This authoritative guide provides a clear overview of the latest current and experimental approaches to the treatment of DMD and examines the clinical, genetic, and pathophysiological aspects of the disease in the context of emerging therapeutic modalities. The only available source on the subject, this reference emphasizes the importance of accurate diagnosis, carrier detection, and genetic counseling, and supplies state-of-the-art contributions on pharmacological interventions, regenerative medicine, and gene therapy.

In this riveting and thought-provoking memoir about her family, her son Ansel, and his progressive disability, Penny Wolfson embarks on a quest that explores special education, giftedness, prenatal testing, and the genes she shares with her mother, sisters, and son. While Moonrise is an eloquent narrative of one family, it also asks profound questions about our genetic selves.

Llama on the Lam LLAMA ON THE LAM is a fictional account of a true tale of a runaway llama that becomes the focus of a chase by the authorities assisted by five bright neighborhood youngsters. The chase and capture of the llama tightens the bond between three of the friends, one with Muscular Dystrophy. The captured llama is taken in by Horses' Haven, a Michigan animal rescue group located in South Lyon, Michigan.

One of the threesome, a boy named Alex, moves away leaving his friends behind. At about the same time, the owner of Whoop for Joy, a retired racehorse, decides to adopt the rescued llama as a buddy for the aging equine. (For fans of Whoop for Joy, the retired thoroughbred racehorse, the title character in Briggs-Bunting's first children's book, he joins the fun with the arrival of the "rescued" llama.) But the llama, ever a clever escape artist, once again manages to go on the lam precipitating an unexpected meeting between Alex and Beth, a neighbor girl who takes care of Whoop and the newly adopted llama.

What follows is a summer and fall filled with escapes and chases as Alex, Beth and occasionally Whoop, try to round-up the rascally critter. In the process Alex and Beth become close friends. But when Alex's friend with Muscular Dystrophy suffers a serious illness, a skeptical Alex must discover if the legends about llamas and wishes are true.

Chance of a Lifetime (Silver Blades) Book Three in an exciting Olympic trilogy!

Tori and Jill are getting the chance of a lifetime. They're going to Japan for the 1998 Winter Games--Tori as a member of the U.S. Olympic team, Jill as an alternate. They're both extremely excited.

But Tori is also scared. Very scared. She has a serious muscle disease that is slowly draining her body of strength. It took every ounce of Tori's energy just to finish her routine at Nationals and qualify for the Olympics. Now she must skate in front of the world. But even walking is torture for Tori lately. And she knows that if she fails, she'll let down everyone she loves...and her entire country.

Recommended Books on Muscular Dystrophy